26 DAYS TO THE DC RACE FOR HOPE

We are getting very close to our 5th DC Race for Hope. It is so hard to believe that time has gone by so fast yet in some ways so slow. The Race is such a great event as it has raised so much money to find a cure for brain tumors and raise much needed awareness. There are way to many people dying each year from this terrible disease especially kids. As I have said before it so unnatural and unconscionable for a parent to bury a child. It has to be the worst thing in the world. I can tell you that we know to many people that have buried their children because of their brain tumor. We need to do more to find a cure and more research for pediatric brain tumors. I wake up every day a blessed person that I can see my Justin and give him a kiss before he goes to school and do the same before he goes to bed. The simple things that we all take for granted are no longer simple in fact for our family, they are milestones for Justin. He is about to finish 11th grade and go to college next year. If you told me that 5 years ago I would not have believed it. See, each day we walk on eggshells with Justin, it is very hard to describe unless you are going through it. We still have a hard time especially during his testing which is about every 2 1/2 months between his extensive eye exams and eye mapping and his MRI's. We were scheduled to have his MRI in Boston May 5th the day after the Race but we felt it would be to hard and emotional for him. Therefore, we are going up to Mass General May 12th for his MRI. Justin is excited for the Race but as you can imagine he has a hard time believing that he has a brain tumor and wears the yellow survivor shirt. We hope to see you all out there supporting the Race and Justin's Quest team. Thank you again for your love and support.