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Wednesday, December 10, 2014

Exciting News

It has been awhile since I have updated you. Justin was accepted early decision to Salisbury University and he will play soccer for the team. Justin is so happy that his dream of attending Salisbury University came true. He plans to continue his endeavors with Justin's Quest at Salisbury. The college student body is very community orientated and is a great match to help and work with Justin continue his work to raise awareness and find a cure for brain tumors.  I cannot explain to you the feeling that Audrey and I have. As I have said earlier that every milestone that Justin achieves is so incredibly important and gratifying because of his brain tumor. When he was diagnosed we never thought he would even be alive to attend college. Not only is he going to a fantastic academic school but playing soccer for great team. Having faith and the best medical team has helped Justin beat all odds. Also, all of the prayers that Justin has received and continues to receive is also making a difference. As I write this I have to pinch myself that Justin is here on this earth, doing well and enjoying life. About 2 months ago Justin came to Audrey and I and asked us if he can get a tattoo. Of course Audrey and I were shocked but he just turned 18 and can get a tattoo without our approval. I asked him what type of tattoo do you want. He said " I want to get a Tatoo with the saying God gives his hardest battles to his strongest warriors with his date of diagnosis 3/12/09." Well Audrey and I were taken back by this phrase as quite it frankly blew us away at the meaning of the saying and most importantly what it means to him. We told him that this is permanent for the rest of his life. Justin recognized this but felt very strong that his brain tumor is one of the things that defines who he is. We went with him to get the tattoo which he had placed on the right side of his ribs. It was incredibly painful for him, but he was a soldier. Justin is so proud of this tattoo because it gives him a permanent badge of courage of his plight and the continued desire to raise awareness and find a cure for brain tumors. This kid never seems to amaze me. We are going to Mass general Hospital December 16th for Justin's MRI and doctors appointments. Of course this is a very stressful time for him and the family. We have been going to the eye doctor every 6 months and getting a special eye mapping test of his eye and optic nerves every 6 months. All of this is testing is done alternatively thereby giving Justin testing every 2 months to catch any new changes in Justin's brain tumor. We are very blessed to have Justin here and the rest of our boys.We will keep you posted. Happy and healthy holidays to all!

Saturday, September 13, 2014

Salisbury University

We are pleased to announce that Justin has officially applied early decision to Salisbury University. Justin is so excited about going to SU. It is a dream for him to be a model student/athlete. He wants to play soccer for SU and be a contributor to the school. For Audrey and I it is unbelievable to fathom that Justin is going to college. We are so lucky because we did not know if Justin would be on this earth to achieve this milestone. All the little things he does are a blessing but going to college is just an unbelievable feeling for our family. I have to pinch myself that Justin has this opportunity. Since we submitted the application to SU I have felt a sense of peace and reflection that life is so precious. I am soaking it all in and trying to enjoy my family more. Justin has been such a blessing to us helping our family smell the roses. He is doing great in school and fantastic on the varsity soccer team where he is the captain. December is a big month for Justin as he will be at Mass General for testing. In the meantime he is going getting special eye testing soon and as always we are praying for a good result.

Monday, August 18, 2014

SENIOR YEAR

Justin is about to embark on an incredible milestone for any high school student and that is graduation from high school. As I ponder this, I realize that this feat is incredibly significant because just 5 years ago we were not sure if Justin would even be here to graduate much less have the scholastic ability because of potential treatment. As I have said in previous blogs all the little milestones that parents take for granted, we on the other hand count our blessings when each milestone is achieved by Justin. It is with great joy that Audrey, me and the rest of the family will witness Justin graduate from Bullis. Today he starts his last season on the Varsity soccer team and probably will be named a captain. Again I have to pinch myself as to how lucky we are that he is achieving all these milestones. I chatted with him this morning to say how proud we are of him and to enjoy this year. He was so excited to start his senior year, but there is a bit of trepidation going off to college and leaving the nest. All kids have that feeling of trepidation but for obvious reasons Justin's is more pronounced. We know he will do great at college. He is so excited to apply early decision to his dream school, Salisbury University where he also wants to play soccer for the team. Salisbury is a fantastic school and we met so many wonderful people at our visit that we are certain that it is the right college for Justin. I will update you on the progress of Justin's senior journey. We could not be prouder of Justin.

Friday, May 9, 2014

Thanks To All that Supported Us at the Race

Audrey, Justin ,myself and the rest of our family want to thank everybody who supported our team Justin's Quest for the DC Race for Hope for the Cure. It was a beautiful day, sunny and a bit cool. Again, I have to pinch myself that I am at this race to find a cure for brain tumors because my son Justin has one. It is so surreal to  see him in the yellow survivor shirt. Thankfully he is a survivor as we pass by the memorial tent of those that passed away from a brain tumor...your heart just breaks. I want to give a big shout out and personal thanks to my dear friend Robbie who I have known for over 36 years. He has been at the race for the past 3 years, but this year he was so instrumental in helping Justin get through the walk. This is a very hard and emotional day for Justin. He is sad yet glad to be helping out to find a cure. It has to be hard for a kid to deal with this.Justin, myself and Robbie walked together. Robbie was great keeping Justin engaged with his wonderful stories. Before you know it the race was over. Justin is so glad to raise money and awareness for a cure. For a moment put yourself in his shoes wearing his yellow shirt thankfully branded a survivor but still not knowing your outcome and destiny with this terrible disease. Her went home after the race emotionally drained and slept for 4 hours. This Monday is another big day for us in Boston at Mass General Hospital for Justin having his MRI and Doctor's appointments. We are praying for the best. I will keep you all posted and thanks again for the love and support!

Tuesday, April 8, 2014

26 DAYS TO THE DC RACE FOR HOPE

We are getting very close to our 5th DC Race for Hope. It is so hard to believe that time has gone by so fast yet in some ways so slow. The Race is such a great event as it has raised so much money to find a cure for brain tumors and raise much needed awareness. There are way to many people dying each year from this terrible disease especially kids. As I have said before it so unnatural and unconscionable for a parent to bury a child. It has to be the worst thing in the world. I can tell you that we know to many people that have buried their children because of their brain tumor. We need to do more to find a cure and more research for pediatric brain tumors. I wake up every day a blessed person that I can see my Justin and give him a kiss before he goes to school and do the same before he goes to bed. The simple things that we all take for granted are no longer simple in fact for our family, they are milestones for Justin. He is about to finish 11th grade and go to college next year. If you told me that 5 years ago I would not have believed it. See, each day we walk on eggshells with Justin, it is very hard to describe unless you are going through it. We still have a hard time especially during his testing which is about every 2 1/2 months between his extensive eye exams and eye mapping and his MRI's. We were scheduled to have his MRI in Boston May 5th the day after the Race but we felt it would be to hard and emotional for him. Therefore, we are going up to Mass General May 12th for his MRI. Justin is excited for the Race but as you can imagine he has a hard time believing that he has a brain tumor and wears the yellow survivor shirt. We hope to see you all out there supporting the Race and Justin's Quest team. Thank you again for your love and support.

Friday, March 14, 2014

5 Year Anniversary of Justin's Diagnosis of His Brain Tumor

It is incredibly hard to believe that Justin was diagnosed with his brain tumor 5 years ago. Upon reflection of this remarkable anniversary we have so many emotions that our whole family has felt and experienced. The time went by so fast. However, I can still remember like it was yesterday receiving the horrific news that Justin has a brain tumor. Justin had an MRI of his pituitary gland because he was about to go on growth hormones on a Thursday. That Saturday, we received a fax of the MRI report to our house that said Justin had a brain tumor. What a horrible and extremely cold way way to find out the devastating news that your 12 year old son has a brain tumor. Of course we were hysterical and in a complete panic. I reached out to many people including speaking with our endocrine doctor on that Sunday. He said as I remember vividly that you need to see someone immediately. Luckily we were able to get into Children's Hospital in D.C. for an MRI that Monday to get a more accurate scan of the area in his brain and as we hoped for a contradiction that he has a brain tumor. We got the scan and it was very hard to explain to Justin why he was getting another MRI, but we just told him we needed more information to get the growth hormones he needed and wanted to grow as he was very short. Audrey and I were a wreck as you can imagine. Justin was sedated for the MRI and I can remember being in the recovery room with him and Audrey. We were stroking his face as he was still asleep and we were very emotional. The nurse on duty was there praying for Justin to be OK. It was an unbelievable scene as 3 days before we were a normal family with no health issues. We were told to come back Tuesday morning to see the doctor and get the results. What a long night for Audrey and I. Justin was clueless as to what was going on. In fact in his mind he was just excited to get growth hormones so he would not get teased anymore about being short. The next morning we arrived at the waiting room at Children's Hospital only to be greeted by social worker who asked to take Justin to go play with toys and, the worst was telling Justin the next day he had a brain tumor. It was the hardest thing I had ever had to do. As one could imagine Justin's response was incredibly heart breaking. 5 weeks later we started our first team for the Race for Hope. Now fast forward 5 years and I can report that Justin is doing as well as can be expected and living like a typical teenager. We have had our moments and some very trying times during this unexpected and unknown journey.Yes he has to wonder about his brain tumor, but he is strong and we have the best medical team for his type of brain tumor at Mass General Hospital. In fact we are monitoring Justin with various tests and MRI's every 2-3 months to stay on top of his tumor and changes. It is very hard to have a child with a brain tumor always walking on eggshells but he is in the best possible situation given his circumstance. Every milestone that he achieves has a much greater meaning and enjoyment than one would have from a healthy child. We feel so blessed to have him around for these milestones. We are very fortunate as so many parents have lost a child to a brain tumor. In fact, the world just lost a very courageous young man this past Tuesday Zach Lederer to his 9 year battle with a brain tumor. A very tragic loss and our thoughts and prayers go out to his family. We can only hope and pray that God will keep Justin as safe as possible. Please go www.curebraintumors.org and sign up for our team Justin's Quest and help us raise awareness and find a cure for brain tumors. I thought it was appropriate to take a moment to reflect where we were 5 years ago till now. We are very thankful for all the blessings for Justin. Thank you for your continued love, support and prayers for Justin. Hope to see you at the Race May 4, 2014.

Sunday, January 26, 2014

DC RACE FOR HOPE MAY 4, 2014

It is hard to believe that Justin has signed up his team Justin's Quest for now 5 years. It has gone by so fast yet life has been a blur and so hazy since he was diagnosed. I was trying to copy and paste Justin's hand written letter that he sent out to so many people for his first race. I will however provide you the text and if you can imagine it in the hand writing of a very scared little 12 year old boy who has a brain tumor. Mind you he wrote this letter about 2 weeks after he was diagnosed. The letter reads as follows: DEAR FRIENDS AND FAMILY, MY NAME IS JUSTIN FRIEDLANDER AND I WAS JUST DIAGNOSED WITH A BRAIN TUMOR ON MARCH 16TH 2009. I WAS VERY SAD AND SCARED AND COULD NOT UNDERSTAND WHY GOD GAVE ME THIS. MY MOMMY AND DADDY SAID THAT GOD CHOSE ME BECAUSE I AM VERY STRONG AND I CAN MAKE DIFFERENCE IN HELPING PEOPLE WITH BRAIN TUMORS. PLEASE HELP ME HELP OTHERS WITH A BRAIN TUMOR AND DONATE TO MY TEAM JUSTIN UNITED IN THE RACE FOR HOPE MAY 3, 2009. THANK YOU SO MUCH FOR SUPPORTING ME. LOVE, JUSTIN We are gearing up to raise money for this race and of course appreciate everyone's love and support. Again, we cannot express how proud we are of Justin. His brain tumor has had a positive influence on so many people and has defined in him in some fashion that one would see such love, courage and compassion that exudes from Justin. Justin we love you very much. Keep fighting the good fight not only for you but those others that have a brain tumor.