Proceeds to benefit accelerate brain cancer cure


Sunday, December 15, 2013

Happy Holidays

Justin and our family would like to wish everyone a happy and healthy holiday season. Justin just finished his first trimester at the Bullis School and he did fantastic. We are so proud of him. Justin is about to go to Tampa Florida with his soccer team the Baltimore Celtic to play in the IMG nations top soccer tournament against the U.S. National team and the English Premier youth club team Tottenham. This is so exciting for him and our family. Who would think after Justin's diagnosis of his brain tumor, he would be playing for one of the premier soccer  clubs in the nation. We just came back from Boston visiting Mass General for testing and his MRI and received some news that Justin's brain tumor is having an effect on his optic nerve. This was very scary for him to hear and of course us but we are again blessed that that we will not treat as of yet. We still have to pinch ourselves as parents that we have a child with an inoperable brain tumor. It seems so unbelievable. We will monitor him very close and in fact one of Mass General's doctors is taking Justin's case for review at a leading conference among radiologists in the United States. We feel so fortunate to have such a great team at Mass General Hospital. The people are just so fantastic and treat us like family. Audrey had a meeting with Accelerate Brain Cancer Cure and Beth Anne Telford, who is a brain tumor survivor that has worked so tirelessly to find a cure, to come up with our next event to raise awareness and find a cure for this terrible disease. Justin and Beth Anne are scheduled to speak at a symposium of very influential people in February. Justin will get on this stage and tell his story about living with a brain tumor. I still cannot believe how strong he is and his tremendous will and desire to help others and find a cure for brain tumors. Thanks again for everyone's support.